As I am sitting down to type this, my son is in his room, at 10am for probably the 10th time. We are at a lost. This weekend has been horrible. This week has been HARD. I feel like we are the only ones that go through this even though I know that is far from the truth. Dealing with a child with development delays on top of being a typical three year old or mostly at this time, still a two year old (even though he is 3 1/2 years old) is hard. We are frustrated. I actually just sobbed last night in the middle of bath time. Bath time should be fun- NOT HARD!!
This past week-
Aiden had his new school on Monday, Tuesday and Thursday from 1:15 until 4:15. That means he missed his afternoon nap. He needs a nap. He is learning how to live without a nap. We are learning how to live with him without his nap. He had his other preschool on Wednesday in the am. By Thursday night, he was asleep in 5 minutes after leaving his memere's house at 5:15pm. The kid is toast.
All week his word has been no. He turns in the dead weight, limp child who is kicking and screaming. Even when he means to say yes- he says no. Even with signs...this isn't working. Nothing works...nothing motivates him...
On Thursday, Eli had the worst day of his life. He looks like he has been put through a meat grinder and that meat grinder is his brother. Black eye and scratches all over his face.
My prayer every night- that some day, some how, his big brother will hug him and kiss him and play with him and really appreciate him for who he is... his little brother who looks up to him and just wants to play with him.
(And that his language delay and cognitive delay will grow 10 fold this year for everyone's benefit and sanity.)
We are suppose to go to a birthday party at 12:30 today. I am not sure how we are going to do this today. I really would like him to get that nap in before a big week again (this is the last week of his Wednesday summer school program).
2 comments:
I love you...
You and Russ and your Mom are doing awesome.
Seriously.
*hugs*
Stay home. He needs to sleep.
I know it will be hard, but there are going to be other birthdays, and give him the best preparation for the week ahead.
(My two cents... not trying to sound forceful...)
Poor Eli-baby...
I am so glad that baby/toddler younger brothers are so resilient. *huge hugs*
You will make it to the other side of this.
I promise.
This was a tough time for me. The first few months when everything in changing and you really have no clue what you are doing. I'm here if you need me, you know that. Please just take it slow, don't just jump in. What therapies besides Developmental therapy is he getting? Is he getting speech or OT? Really try and get these things going if you can get your school to re-evaluate him in his school setting they can get it written in if they think he needs it. If he is getting enough services you can apply for Katie Beckett (it's not income sensitive just therapy sensitive) insurance, it will help him by getting a case manager and even some in-home services. Just let me know it you need some help figuring it out.
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